OK everyone, I'm reaching out for help...
In July, I got a pain on the top of my head that hurt to touch my head. I couldn't brush my hair, I had to hold my hand over my head to take a shower, I couldn't even put my sunglasses on top of my head. It did not hurt other than touching it. And it was on the top of my head, on the left side only, about an inch in diameter. There was NOT a rash.
After a couple of weeks of the head pain, I started having a weighted feeling in my head. Kind of a clumsiness, and sometimes a dizziness. And sometimes my ears felt full of air. It's very hard to explain. And yes, I was stressing out about this pain on my head.
After four or five weeks of all of that, it started getting better. Very slowly getting better. Not all at once.
In September, I went a week and a half with no pain or weirdness in my head what so ever. NO SYMPTOMS AT ALL! So it took about two months. I can actually give you exact dates. I noticed the pain on my head on July 20. And the week and half of no symptoms at all started on September 14.
Then, I went to an ear nose and throat Dr. (Sept 25) And let me just say, it took about five weeks to get into the ENT, and I made that appointment because we thought maybe there was some vertigo issues (crystals in my ears messed up?)
BUT at the time I went to him I had been totally fine for almost two weeks.
*He checked the pressure in my ears, he did a hearing test (audiologist did that) and those were fine.
THEN he did this maneuver where I sat on the Dr.'s table with my legs straight out in front of me. He had me lie back and as I was starting to lie back, he pushed me back quickly and turned my head to the left. He held me in that position and I was to keep my eyes open. When I sat back up the room started spinning. He did it with my head to the right side, the room did NOT spin. He did it again on the left side and the room spun, again.
*He does not think it has anything to do with the crystals in my ear.
Since that time, I have had bouts of the dizziness, and I attributed it to the maneuver the ENT Dr. did. Just bouts, nothing that lasted all day long.
I went to a neurologist last week. It took OVER TWO MONTHS to get into her. By the time I got into her, I was only having the few bouts of dizziness, which we thought was from the maneuver the ENT Dr. did. She did a few tests, I think to test strength and coordination, and said to come back if the pain comes back, and she will give me a nerve block, which I'm not sure I want.
So, the ENT Dr. and the Neurologist appts. were made during the worst of this, but I did not get into them until it was over.
*My regular GP thinks I have a pinched nerve somewhere that is giving me a superficial pain in the top of my head.
*My Ophthalmologist thinks I had shingles, without the rash, and that it will go away as slowly as it came on.
*The ENT Dr. thinks it was a virus, related to shingles, but not shingles, and that it will go away as slowly as it came on. He thinks it was brought on by stress.
These are all theories.
I will say at the time this came on, I was stressed out because I was having problems with my teeth for months (another story), and my eyes. I had been to the eye Dr. several times because of flashes in my right eye. The flashes are from the vitreous (membrane? gel? something....) pulling away from the retina, which is an age thing. It causes floaters. (I had two laser eye surgeries because of very small tears. on a scale of 1-10, not even a 1, he said)
The pain ON my head did start during this time that I was going to my eye Dr.
*He ordered Sed rate (which came back 6 - which is good) and checked my optical nerve and macula.
*I have had an MRI, which came back fine.
*I have had blood work which all came back fine.
*I've had vitamin levels tested (more blood work) and a TSH (thyroid) check. All came back fine.
Yesterday, I had the weighted, weird, clumsy feeling in my head again.
Today, I was dizzy when I got up this morning. And now it hurts on top of my head, again, plus the weirdness. I noticed it when I brushed my hair.
The pain on my head gets worse as the day wears on. Which is what happened when it was at it's peak in August.
Please don't google WebMD and tell me everything you see on there. Believe me, I've done it. I was just wondering if anyone out there has heard of this, or knows anyone it has happened to. I'm at a loss.